We are thrilled to announce the SYNGAP SOIREE • SPARKS OF HOPE fundraising gala.

This event will bring together groups and individuals interested in furthering the mission of SynGAP Research Fund (SRF) and will be an opportunity to educate the community about SYNGAP1, a rare neurological disorder. Please join us for a special evening featuring an auction, dining, and entertainment. 

NOVEMBER 12, 2022

PIEDMONT DRIVING CLUB  

ATLANTA, GEORGIA 

7:00-10:00 PM

6:00 PM Cocktail Reception for Sponsors | Cocktail Attire ~ Coat & Tie Required  

We look forward to hosting an evening

benefitting the SynGAP Research Fund (SRF)

in honor of

JANSEN JONES

Daughter of Suzanne and Brent Jones

WHAT IS SYNGAP1?

SYNGAP1 is a rare neurological disorder that currently impacts nearly 350 known patients in the United States and 1,055 known patients globally. SYNGAP1 is caused by a mutation on the SYNGAP1 gene resulting in a lack of sufficient SynGAP protein critical for proper brain function. This deficit causes a spectrum of challenges including intellectual disability, epilepsy, autism, global developmental delay, severe speech and language disabilities, behavior disorders, and sleep disturbances.

SYNGAP RESEARCH FUND'S MISSION

SynGAP Research Fund’s mission is to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies, and support systems. Completely parent-led, SRF is the largest non-profit funder of SYNGAP1 research having committed over $2M in grants. All operational costs are covered by the founders. To learn more, please visit SyngapResearchFund.org. 

JANSEN'S JOURNEY

To learn more about Jansen Jones, please click here. If interested in the diagnostic quest that led to Jansen's SYNGAP1 discovery, we invite you to read her parents' Rare Disease Day Interview found here.