Event Information

We are thrilled to hold the second annual Caren Leib Gala & Auction on October 8th, 2022 at the Raritan Valley Country Club in Bridgewater, New Jersey. This event will bring together groups and individuals interested in furthering the mission of SynGAP Research Fund (SRF) and educating the community about SYNGAP1, a rare neurological disorder. Please join us for a special evening featuring an auction, dining, and entertainment! Mix and mingle over appetizers, dinner, and open bar. We will have music and a live auction. All proceeds benefit SynGAP Research Fund!


RARITAN VALLEY COUNTRY CLUB

BRIDGEWATER, NJ 08807

OCTOBER, 8TH 2022

6:00-10:00 PM


At 66 years old, Caren Leib is the oldest-known SYNGAP1 patient.

 

Celebrating Caren- Short Film- A SYNGAP1 diagnosis, click HERE.

See highlights from last year's gala, HERE.

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WHAT IS SYNGAP1: 

SYNGAP1-related intellectual disability is a rare neurodevelopmental disorder currently impacting 350 known patients in the United States and 1,055 known patients globally. SYNGAP-1 is due to a random typo in a patient's DNA which results in a 50% deduction of a vital protein required for proper brain development and memory. It is also the cause of all of the symptoms we see in SYNGAP1 patients: intellectual disability, daily seizures, autism, hypotonia (muscle weakness), very limited speech (mostly non-verbal), and severe behavior issues (impulsivity and aggression). As of today, SYNGAP1 has no treatment or cure, and it is our goal to raise funds to accelerate therapies for the condition.

But there is hope! Several institutions and private companies are on the hunt to identify a drug or compound capable of increasing the expression of the working copy of the gene, which would recuse many of the symptoms that challenge SYNGAP1 patients on a daily basis!

OUR MISSION:

The Syngap Research Funds mission is to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies, and support systems. Completely parent-led, SRF is the largest non-government funder of SynGAP research with over $2M in grants.  The founders cover all operational costs, allowing 100% of donations to go to research. Syngap Research Fund incorporated in 2018, is a 501(c)(3) public charity. For more information, visit SynGAPResearchFund.org.


Questions? Please contact Nancy Leib Kessler (Host):

Nancy@Syngapresearchfund.org


Suggested Hotel: Coming Soon!

If you would like to donate by check, please send checks payable to:

SynGAP Research Fund
1270 Lincoln Avenue
Palo Alto CA, 94301

Attention Caren Leib Gala



Sponsorship Opportunties

PURCHASE SPONSORSHIPS HERE

Due September 1st

PURCHASE SPONSORSHIPS HERE

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Gala Faces of SynGAP